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Please use this identifier to cite or link to this item: http://hdl.handle.net/1946/1223

  • Title is in Icelandic The essential structure of patients’ experience of rehabilitation with emphasis on their self reported needs in the context of rehabilitation : a phenomenological study
  • Abstract is in Icelandic

    Reflection on patients’ needs is a necessary part of the assessment of quality of services.
    An interpretive phenomenological study aimed to add to the existing knowledge base
    about the phenomenon patients’ needs in rehabilitation, the patients’ side was explored,
    which is, unfortunately, a rare perspective in rehabilitation literature.
    The sample was purposively selected and consisted of twelve individuals aged 26-85
    years -seven men, five women - who had experienced rehabilitation therapy at one of
    three main rehabilitation clinics in Iceland. The participants were seen as co-researchers
    and their medical diagnoses were heart disease, paralysis, arthritis, chronic lung disease,
    stroke, chronic fatigue, psychological problems and pain. Six co-researchers had been
    referred to rehabilitation following an acute event and six because of a chronic state.
    The study was conducted in accordance with The Vancouver School of Doing
    Phenomenology and each co-researcher was interviewed one to three times. The end
    result was sixteen in-depth interviews that were analyzed thematically and interpreted.
    Six main needs were identified in the co-researchers’ accounts. Firstly, the coresearchers
    needed to be able to cope with the impact of their acute or chronic problems.
    They felt that their ability to cope was strongly tied to their own personal traits, their
    earlier experience and preconceptions, knowing the source of their suffering, and to
    experience a balance between sleep, rest and activity while in rehabilitation. Secondly,
    they needed to adapt to a new self since their accident or illness usually meant adapting
    to new characteristics of self. They needed, however, in the middle of these existential
    changes to be able to sustain a personal role and needed faith, hope and optimism to
    succeed. Thirdly, they needed individualized caring, where they needed to be ‘I’ and not
    just ‘the patient’, they needed to be listened to and heard in a caring relationship where
    their need for privacy, when needed, was respected. Fourthly, they needed emotional
    support from family, peers and staff. Furthermore, they needed a sense of security in a
    stable and homelike environment with available assistance, help and presence. Finally,
    the co-researchers needed a goal -oriented and progressive care, where realistic and
    achievable goals were established, where patient education enhanced their independency
    and they were empowered into a new lifestyle.
    No generalizations will be drawn from the results, as each co-researcher's experience is
    unique. However, phenomenological studies can affect services by facilitating
    understanding and reflection on the subject.

  • Description is in Icelandic Verkefnið er opið nemendum og starfsfólki Háskólans á Akureyri
  • Jan 1, 2006
  • http://hdl.handle.net/1946/1223

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Jónína Sigurgeirsdóttir_e.pdf137.65 kBOpenEssential - efnisyfirlitPDFView/Open
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